Usually we waited for
the doctor in one of two brightly decorated
rooms that had Winnie the Pooh characters wrapped around
the feet of the table stirrups. Today, however, we were taken
to a tiny corner room with no windows. Other than a couple of
charts and an examination table, the room was almost empty.
A chair had to be brought in for me so that I would have a
place to sit down. In the corner there was an old ultrasound machine,
the kind that had levers, like you find on an equalizer.
After a few minutes I
became bored and started playing with
the controls on the ultrasound. I moved the levers up and down
so that they looked like a staircase. Nicki told me to leave them
alone, but if I was going to have to wait, I needed something
to occupy my time. Besides, we weren’t
scheduled for an ultrasound.
When Dr. Newton came in
she was all business. This was unusual
because Dr. Newton doesn’t act like a doctor. She is usually
warm and relaxed, like a favorite aunt telling you about her
latest vacation trip.
Nicki had picked Dr.
Newton as her OB because she made pregnancy
an event. Dr. Newton is a tiny woman — she can’t weigh
more than 100 pounds — and her personality is charmingly understated.
We never felt rushed, and although she must deal
with hundreds of pregnancies each month, we always left with
the feeling that our baby was the most important baby in the
world.
I knew something was
wrong before the doctor said anything. When
she listened for Benjamin’s heartbeat, it was as if a shadow
passed slowly across her face. She hooked Nicki up to the
ultrasound. My face must have flushed when Dr. Newton commented
that someone had fiddled with the settings, but I was
too ashamed to say anything and chose to remain silent.
Nicki shot me the
"gotcha" glance while stifling a grin. Nicki still didn’t
suspect that something was wrong. As
soon as Benjamin’s image appeared on the screen, Dr. Newton
told us that he was in trouble. Fluid had built up in his abdomen.
She said this was consistent with "hydrops," a medical
term for extra fluid or swelling. It
causes heart failure in unborn babies.
I was frozen by her
words. Benjamin’s heart was beating faster
than 250 beats per minute, and it was also irregular. Dr. Newton
told us that his condition was life threatening. When she
left the room to schedule an emergency appointment with a specialist,
Dr. Perry Roussis, Nicki fell into my arms. There was nothing
we could do, no one we could to talk to, so we just held on
to each other and waited for the doctor to return.
Later, I asked Dr.
Newton what she was thinking about when
she told us that Benjamin was dying. She said, "I focused
on what I could do to help your baby
quickly and how I could tell you
about this dangerous situation with the least possible alarm."
When I asked her why, she replied, "My impression of any
pregnancy complication is that the thing moms and dads need
most is information."
She was right. I wanted
information so desperately that I did
not even know how to ask the questions.When Dr. Newton told
us that Benjamin could not survive much longer without immediate
treatment, I withdrew. My questions were replaced with
silence. I was overwhelmed at the thought of losing Benjamin.
I felt smothered. I had to force myself to breathe.
I wanted Dr. Newton to
say that everything was okay. I wanted
to shut my eyes, to close out everything that was happening, to
go back to what it was like yesterday — when the only thing
I had to worry about was getting the nursery ready.
After a moment, I
realized that Dr. Newton wasn’t saying anything.
When I became aware of the silence, I became even more
uneasy. What was I supposed to say? Should I ask questions? Do
I want to know? Not knowing leaves room for the lies we
tell ourselves when we need something to hold onto. Right now
I had nothing.
As I gathered myself, I
asked Dr. Newton how she had known
that something was wrong. She said that the most important
thing she did as a doctor was to listen to her patient.
Women develop a
"sixth sense" during pregnancy, and when she hears
words like "I just don’t feel good" or "I’m
worried," she and her staff
are red flagged that there might be a problem. So when
Nurse Gale did the intake part of Nicki’s appointment, she heard,
or sensed, something when she asked Nicki how she was doing.
Because of what Nicki said, the nurse put us in the ultrasound
room.
More silence. I didn’t
want to hear anything else. My stomach felt
like someone was squeezing it. I felt like I was on an elevator
that was dropping too fast. All I wanted
to do was leave. I wanted to go
to the specialist right then. I wanted another ultrasound.
I wanted Benjamin not to
die. When Dr. Newton said that
there was nothing more that could
be done until tomorrow, my heart fell. People don’t die just
between the hours of nine to five. Benjamin needed — I needed
—something to be done now. But that’s not how it works.
Would Benjamin make it
through the night? Why do we have
to wait until tomorrow to go to the hospital? Is he going to die?
I could not ask these questions either. So an appointment was
made with Dr. Roussis for early the next morning. We were told
to pack some clothes because Nicki would be admitted to the
hospital. The nurse gave Nicki a hug and we walked down the
corridor toward the exit from the office. I locked eyes with Dr.
Newton as we went past her. With that one look, she answered
all of my questions. Benjamin was in trouble and I was about
to endure the darkest night of my life.

F E B R U A R Y 2 5
I HAD JUST MANAGED
to doze off when Nicki called out to
me from the bathroom. I went to her and she started crying. She
said that her water had broken and told me to go get
a nurse. Nicki has been a
gladiator. Although she has been in labor for
more than a week, she was determined that our child would live.
She suffered through the medicines, the tests, and the uncertainty,
without ever losing sight of the goal. No quarter was
asked — none was given.
I have been a coach for
almost all of my adult life. I coach volleyball
and basketball at Anderson County High School. The hardest
thing to teach an athlete is that there is no shame in losing
when you have given your best.
Championships go to only a select
few, but that does not mean that the others who ran the race
or played the game have failed. I tried to tell Nicki that we
were here, and Benjamin had his chance,
because of her. She was inconsolable.
As Nicki was taken back
downstairs to the delivery room, I
was given the responsibility of calling the appropriate family
members. Nicki was given an injection of
a drug called Stadol and she
began a long ride on the mood swing roller coaster. She went from
chatty giddiness to unrelenting anger caused by the release
of pent-up frustration. In no uncertain terms, Nicki told her
mother and me that it was time for the epidural.
I do not know how a
starving animal would react if you tried
to pull food from its mouth, but it cannot be any less fierce
than a pregnant woman about to give
birth who wants pain medication.
Judy and I tried to convince Nicki that we were not part
of a vast conspiracy to keep the pain medicine from her.
By 8:00 that morning,
everyone had arrived, meaning all of
the grandparents, my sister, and our close friends. At 8:30 we
were told that we should expect Benjamin’s
arrival to be between 12:00 and
1:00. I was exhausted. I tried to grab a quick nap
so that I would have the energy to get through the birth.
I had just closed my
eyes when Nicki told me she was feeling some
pressure. At that moment everything exploded. Dr. Roussis
came into the room and scrubbed as he yelled out instructions
to the nurses who were putting up lights and pulling
machines from locked cabinets that I had never seen opened.
One of them made a call to Children’s Hospital to have a
neonatologist present. I experienced my first birth.
Growing up, I never had
a cat, so I never saw kittens being born.
For that matter, I have never seen anything born. Whenever
a birth occurred on television, I either left the room or
changed the channel. I don’t even like to talk about female
hygiene. I would prefer to remain
ignorant about the entire process.
To say that I was reluctant to be a participant in Benjamin’s
birth would be an understatement.
I couldn’t bring
myself to look beyond the sheet. In fact, I passed
out. I was holding Nicki’s hand and the next thing I remember
was waking up as a nurse placed a cold compress on the
back of my neck. I spent the next few minutes with my eyes staring
at the floor, holding Nicki’s hand telling her that she was
doing great.
Nicki had given me a
book to read which detailed everything that
occurred during childbirth. I meant to read it, but had
kept putting it off. I thought I had more time. With everything
that was happening, I felt like a rabbit
caught in the headlights of a
speeding truck. Like the rabbits in Watership Down, I went
"tharn." Why didn’t I read that stupid book! Dr.
Roussis kept me involved with stories about Greece and
the fact that Nicki stood for victory and was where the word "Nike"
came from. The highlight was when he told me that he had
delivered Rick Pitino’s baby. For the average person, this might
not mean anything, but to me the Boston Celtics are almost
synonymous with religion. I have seats from the Boston Garden
in my office and autographed pictures from every Celtic since
Cousey. I did not think that this man could rise any higher in
stature until he mentioned that he had been entrusted with the
birth of baby Pitino.
It is impossible to put
into words what goes on in a delivery room.
I would be lying if I said I enjoyed it or that I recommended
it. The event is overwhelming.
At 9:50 that morning
Benjamin was born. As soon as Dr. Roussis
pulled him out, he held him up for us to see. Nicki was not
wearing her glasses and as her mother reached across the table,
she knocked them onto the floor. This elicited a curse word
from Judy. That was probably the first thing that Benjamin heard.
Dr. Roussis handed
Benjamin over to Dr.Nalle, the neonatologist, who
had brought an isolette with him from Children’s Hospital.
Before Benjamin was taken to Children’s Hospital, Nicki
and I were allowed to put our hands through the openings in
the glass and touch our son for the first time. He is beautiful.
One of the nurses had a
Polaroid™ camera and began shooting
pictures. I put my index finger through the opening into
his bed. He grabbed hold of it. His eyes were not open, and I
don’t even know if he knew that I was his father, but for the
first time in my life I touched someone
who is part of me.
When I was an infant,
Mom and Pop adopted me. Mom used
to tell me that I was more special than any other baby in the
world because she and Pop got to pick me out while all of the
other parents had to take what they got. I could not have had
better parents. Although I rarely think
about being adopted, when my
sister Ann’s son was born, it left me with an odd feeling. Ann
was also adopted and seeing someone that looked like her
made me feel empty.
My Mom and Pop were the
perfect parents, and I would not
trade them for any others. The people who gave birth to me have
no place in my life. I have no desire to ever meet them or to
know anything about them. The only parents that I have, or that
I will ever have, are Bill and Sarah Cantrell. Still, touching
Benjamin’s hand was magical.
As the oxygen in the
isolette began to run low, Benjamin was
taken over to Children’s Hospital with the friends and grandparents
in tow. This left Nicki and me alone for the first time
in more than a week. I crawled up onto the bed with her and
we held each other, laughing and praying.
That night I refused to
go see Benjamin until Nicki could come
with me. It was then that we got our first long look. Benjamin
is in a little plastic oxygen hood. It looks like a cake plate
to me. It sits over his head. Other than that, he is perfect.
All of the grandparents
got to come in, and Kay and George, longtime
friends, slipped in under the pretext of being grandparents. They
were the first non-family members to see Benjamin.
They took his picture to put on the Internet. Everything
that happened during the past week was forgotten.
Benjamin is alive. So am
I. Standing by his crib, actually
seeing him in the flesh, not his
outline, is like looking at a sunrise. I feel like I can start to
live again. I want to cry and laugh at
the same time. It is what I had
imagined it was supposed to be like, only better.
We couldn’t hold him
yet. That would come later. His heart
is beating like a baby’s heart is supposed to beat. He is still
and his eyes are closed, but I could see
him breathe.
The nurse said that we
shouldn’t touch him — too much. We
held his leg and his hand. His little face is red and scrunched
up. His hair is dark like Nicki’s. His
fingers are so small, but his hands are huge. They look like
gloves. He could palm a tennis ball. Benjamin
is now my son. He always was mine, but it’s different when
he’s in a crib instead of inside Nicki. This is the greatest
day of my life. It’s cliché to say, but it’s true. I
went to bed that night and actually slept.
TERROR
IN THE NIGHT
M A R C H 5
I HAVE ONE OF THOSE
DIGITAL CLOCKS with great big numbers
— the kind that was popular in the 1980s — no radio,
no alarm, just a clock. I paid a dollar for it when I worked
at the Radio Shack during college. I’ve kept it because it was
cheap and I like it. I sleep so lightly that I don’t need an
alarm. The telephone rang at 5:50 in the
morning.
When I wake up in the
middle of the night, the first thing I
do is look at the clock. Since Benjamin has been in the hospital
I have gotten into the habit of leaving
a cordless telephone on the
nightstand beside our bed. Things have been going so well that
when the telephone rang, it both startled and terrified me at
the same time.
It rang only once before
I hit the button. I knew it was someone
from the hospital even before I heard the doctor’s voice.
I also knew it was bad. I wanted it to be a crank call — a wrong
number — anyone but someone from the hospital.
Our house was completely
dark except for the red illumination of
the clock and the light from the handset that came on when
I pressed the talk button. I got that feeling you get when you
are driving and you barely avoid an accident — that tingly feeling
that starts just below your neck when you realize what just
happened. Terror hit me hard. Please don’t let it be a call
from the hospital.
I answered before the
second ring stopped. I could hear the
panic in my own voice. As soon as Dr. Howick spoke, I felt my
stomach being ripped out. Doctors can deliver bad news, at inopportune
times, in deliberate fashion. Although he and I had never
met, he assumed, correctly, that I would know who he was.
He did not waste any time on identification or an apology for
calling at that hour, but simply said his name and that Benjamin
had gotten sick during the night and had been intubated. I
didn’t realize that this meant a breathing tube had been inserted
down his throat.
Although I make my
living asking questions, and feel no intimidation
around doctors, my mind was a total blank. I did not
think to ask what had caused Benjamin to be sick or even what
type of sickness he had. All I could think of was "please
don’t die."
Dr. Howick never said
that Benjamin could die, but that’s what
I heard. Over the last two weeks I had conditioned myself for
Benjamin’s death. This call was just confirmation of my fears.
I did not ask any questions because the answers were already
known to me.
After I hung up, I
immediately regretted that the telephone was
on my side of the bed because Nicki did not suffer from
the same affliction that had rendered me incapable of talking.
Within the time that it took for me to
hang up and roll toward her, she
fired off at least ten questions, all of which were appropriate
and none of which I could answer. So I lied.
I suppose it is bad to
admit that you would lie to your wife at
such a critical time. But I was rattled by the call and embarrassed
by my inability to handle the
conversation with the doctor.
I tried to do what I
felt was best, so I told Nicki that Benjamin
was sick and that we needed to go to the hospital later that
morning. I embellished the conversation by adding that there
was no need to come immediately, omitting the reason — which
was that visitors were not allowed into the NICU until 8:30
a.m.
We lay in bed, but there
was absolutely no way to sleep. I couldn’t
even shut my eyes. I stayed completely still. I didn’t even
disturb the sheets. Maybe if I didn’t move, it would be OK.
I tried to hide in the morning darkness
— to escape what was happening.
We got up around 7:30
a.m. As we showered and prepared to
leave, we called our respective parents. The trip to the hospital
was made in silence. Nicki and I didn’t
say a word to each other during
the drive or on the way up to the Fifth Floor because
neither one of us wanted to confront the fact that something terrible
was happening. We were still getting used to the idea
that we had a son. If being in shock means not having the ability
to speak, feeling totally withdrawn, and having the full body
tingles, then I was in shock.
As we stepped off of the
elevator at the NICU, the blinds to
the unit had not yet been opened. We were the only people in the
hallway. We walked in through the door that leads to the intercom
and hit the button. After we identified ourselves, we were
buzzed back. We scrubbed quickly and walked toward where
Benjamin had been the night before.
As we turned the corner,
the first thing I saw was Nicki’s mother
sitting by the last of the twelve critical care cribs with her
head in her hands — crying. I did not see the doctor or the
nurses. All I could see was Judy and
that Benjamin was now in the crib where Emily had been when she
died.
It was only about twenty
feet from where we were to the crib,
but it might as well have been a mile. As we walked, a gentleman
in a suit and tie met us halfway there.
He identified himself as being a
chaplain. He told me that Benjamin was not doing
well and he asked to say a prayer.
I am a Christian and my
faith is important. I look to God and
the Church for guidance concerning even minor problems, let
alone a major crisis. Nicki and I knew nothing about Benjamin’s
condition, except that his grandmother was crying her
eyes out at his bedside. My immediate reaction was to say, "Back
away, Bible Man — let’s give the doctors a chance to work!"
Before we resorted to praying, I wanted to give medicine a
chance. But for the fact that he was shielding himself with the
Inspired Word of our God, I probably
would have hit him — hard.
Instead, I stopped and prayed with him while Nicki went on
to Benjamin’s bedside.
The chaplain did not
even know my son’s name. He offered
a fairly generic prayer for Benjamin’s life — the whole time
I kept thinking, "Why am I standing here with this man who
has just turned my panic meter past ten to the mythical eleven?"
Nicki does not suffer
from the guilt that comes from a Southern
Baptist upbringing, so she totally disregarded Bible Man
and sought out the doctor. By the time I arrived, she was well
into a discussion with Dr. Buchheit, the neonatologist responsible
for the critical care babies.
During the night
Benjamin had been stricken by some sort
of an infection and they were struggling to keep him alive. Benjamin’s
eyes were closed and he had a tube down his throat to
help him breathe. His body was a tangle of wires and monitors.
Sometime during the next
half hour, a nurse explained to us
what all of the i.v.’s and tubes were for and that the important
thing now was to determine the cause of
the infection. Nicki and I sat
with Benjamin and we both began to cry. We didn’t talk
— she just placed her hand against his chest while it rose and
fell with the rhythm of the machines. I put a hand over my face
to cover the tears.
I am not a crier. I can
count on one hand the number of times
that I have cried in my life —I especially don’t cry in public.
I don’t believe there is such a thing as a "good" cry.
But here I was sitting in a room
beside my son and my wife — with everyone
looking at me — crying. Dr. Prinz, the senior partner of
the group that oversees the NICU, came over behind Nicki and
me and hugged us both. He offered no encouragement, just a
hug. As soon as I felt his embrace, I started to shake. Tears
flooded from my eyes. I felt such pain,
but I couldn’t let it out fast
enough. I lost my breath.
About 9:00 that morning
the blinds to the big observation window
were opened. Several members of our family had assembled
outside. I couldn’t look at them. I didn’t want them to
see me crying. I didn’t want them to see me at all. If they
asked me questions, I would have to tell
them what was happening.
I didn’t know if I
could say the words. So I looked down —
not at Benjamin or at Nicki — just down. I covered my eyes with
my hands and tried to block everything out — tried to hide.
Nicki wanted me to come
with her to tell the family what was
happening, but I wouldn’t go. I pulled away when she took my
hand. All I could say was "you go." I couldn’t even
watch her as she walked away.
While she was gone, I sat by Benjamin’s
crib. Until then, Nicki and I had
always visited Benjamin together. This was the first
time that he and I had ever been alone. I did not know what to
do so I told him about his name and why we had chosen to call
him Benjamin. I collect comic books. Mom got me started when
I was little. When I was a child, she and Pop would take my
sister Ann and me to the store. We each got a quarter. Ann bought
candy and I bought comic books. I still buy them — by the
hundreds.
By the time I was six
years old, I was hooked. I would read them
carefully and then stack them neatly in rows by titles — Spider-Man,
Daredevil, and The Avengers. I saved my money and
bought as many as I could. I took my
clothes out of the chest in my
bedroom so I would have a place to store them. My favorite comic
book was the Fantastic Four and my favorite character was
Benjamin Grimm, the Thing.
The Fantastic Four were
Marvel Comics’ first superheroes. Benjamin
Grimm had super-human strength, but he was also turned
into an orange, rock-skinned monster. I loved him!
People were afraid of
him because he was so ugly, but he had a big
heart. He also had an indomitable spirit and a curmudgeon’s
sense of humor. He was the bravest and
most loyal of all of the heroes
— always the first to sacrifice himself for the good of the
group — and he never gave up.
We spent months trying
to come up with a name. I wanted Robert,
my grandfather’s name, but Nicki refused to have a child
named Bob. My second choice was Atticus — after my literary
idol Atticus Finch from To Kill a
Mocking Bird. Sebastian, Samuel,
and Samson were all shot down. Nicki liked yuppie names
like Carter, Aaron, or Brett. We couldn’t agree on anything.
Finally, after five
months, I told her that I had been holding back
a name I loved — Benjamin. She said Benjamin was perfect.
So that is what I told Benjamin — his
name is the same as my favorite
comic book character. I paid a lot of money for a copy
of Fantastic Four 1 so that Benjamin could have it as a
keepsake from me to him.
I also told him about
myself and about Nicki. I told Benjamin
about our love of movies and Star Trek. I talked about
sports and how he had to get better so
that he and I could go over to my
Pop’s house and watch baseball games and Tennessee football.
I told him that I would teach him how to play basketball and
how to fish. I told him about our dog — his dog now —J.R.,
our Jack Russell Terrier.
After I told Benjamin
everything I could think to tell him, everything
I wanted to tell him in case he died, I didn’t want it to
be quiet. I wanted to give him something to hold onto, a reason
to live. For some reason, I decided to
sing.
I am not a singer. Most
of my friends and family will tell you
that not only can I not carry a tune, I cannot even pick one up.
I don’t even sound good to myself when I sing. Someone has even
given me a poster that reads "Make
a joyful noise unto the Lord,
even if you’re a little off key."
But as bad as I am, I know a lot
of songs. On this morning, at this time, the song I chose to sing
was He Stopped Loving Her Today by George Jones. It’s my
favorite song. I sang it through ten
straight times.
I would have kept on
singing except that Dr. Buchheit came
over to me and asked me if I had any questions. Feeling the
need to be strong, I told him that I could handle bad news and
that I wanted him to give it to me straight. My exact words were
that I did not want him to sugarcoat it, but to tell me exactly
how bad it was. Without blinking an eye,
he said that I should start
preparing myself because Benjamin could die. I
quickly realized that I needed this information sugarcoated and
that I could not handle it. I also realized that I did not
like Dr. Buchheit. He asked if I had any other questions. I did
not.
From the other side of
the window, Nicki saw Dr. Buchheit come
up to me so she raced back in, as soon as she could scrubin, to
find out what he had said. For the second time within a three-hour
span, I lied to my wife. I told her that Dr. Buchheit had
just repeated what he told her earlier that morning. Part
of me died during the next two hours. It began when my
friend Ashley came back to Benjamin’s crib. The NICU is parent
friendly, with two exceptions. Only parents and grandparents are
allowed to come in to visit and under no circumstances are
more than two people allowed at one time. Ashley was
neither a parent nor a grandparent, and even though I was in
a semi-catatonic state, I was able to figure out that he, Nicki,
and I totaled three, not two.
I automatically assumed
that this meant that Benjamin was
as good as dead and that they were relaxing the rules so that
Ashley could see Benjamin while he was
still alive. As soon as Ashley
came, I started crying again. To make matters worse, Ashley
was followed by a steady procession of visitors, including my
sister, another friend, Matt, and Chris, our pastor. Leigh Ann
was our nurse. She never left Benjamin’s
side. As the day progressed, his
condition deteriorated. At shift change, Andrea replaced
her. By this time, Nicki and I had been at the hospital for
almost sixteen hours. I felt that the best thing for her to do
was to go home. She was still recovering
from the trauma of Benjamin’s
delivery. The only way Nicki would agree to leave was
if I promised to spend the night at Benjamin’s bedside. In an
attempt to make up for what had been a horrible husband day,
I agreed. That was a mistake.
Nicki left the hospital
at about 11:30. She called me when she
got home and I promised again that I would call her if anything
happened. This was my third lie of
the day. At 2:00 in the
morning, Benjamin crashed. Although
parents are allowed to stay all night, no one else but
me had stayed past midnight. By 12:30 a.m., even the doctor who
is on call had gone to bed. Except for the nurses, I was the
only other person in the room. The room still seemed brightly
lit because the lights in the nursery are never turned completely
off — they are only dimmed.
My medical experience is
limited to what I have learned from
ER. When Benjamin crashed, it was just like it is on
television. All of the bells and
the monitors went off and within seconds four
nurses and a doctor were working on him. I was standing
off to the side, watching everything happen. When one of
the nurses saw me, she politely, but firmly, kicked me out of
the NICU. For the next hour I waited in
the hallway not knowing if
Benjamin was alive or dead. Finally, Andrea came to get me.
Benjamin was on full life support.

A P R I L 1
BENJAMIN
WILL GET TO COME HOME this weekend!
This is going to be my
April Fool’s Day joke. I am going to
tell everyone who asks me how Benjamin is doing that
the doctors are so impressed with his progress that they are going
to release him sometime over the weekend.
Sal shuttled me to the
hospital late in the afternoon. Nicki and
her mom had already left for the day, so I got to spend some time
alone with Benjamin before dinner. While I was there, Nicki
called to check in and I pretended to be a nurse and took the
call. When Nicki asked how everything was going, I attempted my
best accent and said that he was doing great and that his release
orders were being signed. The nurses and staff who were within
earshot thought I was hilarious. Nicki was not amused.
Our nurse today is
Esther. Although Esther is married to an
Irishman, she was raised in Panama. Esther is one of the best liked
nurses in the NICU. She is Nicki’s
favorite daytime nurse.
I am much closer to the
nighttime nurses because I am only able to
visit briefly during the late afternoon after work. My daytime
visits usually consist of scrubbing in,
reading the chart, and getting the
quick rundown of the day’s activities before visiting hours
are over. Thanks to Sal, I arrived at the hospital early today
and settled in for a fairly long visit. Esther
and Nicki became friends when Esther put robot sheets
on Benjamin’s bed. She told Nicki that since Benjamin was
such a bright little boy, he needed to have robots on his sheets
rather than regular hospital sheets.
Esther is responsible
for all of the decorations in the nursery. For
St. Patrick’s Day, she put a clover at the top of each babies’
crib with their name on it and hung leprechauns and green
all throughout the nursery. Now that the Easter season is approaching,
the clovers have been replaced with Easter eggs. Paper
bunnies and chicks are everywhere.
It’s hard to believe
that it’s already April. I would have forgotten the
month change except that Jayme, who works with me,
celebrates her birthday on April Fool’s Day. When Benjamin was
born, I thought that he would already be home by now.
Instead, two times
during the last six weeks I have had to prepare myself
for the possibility that he would die. I cannot stand the
thought of having to go through that again.
Nicki refuses to talk
about Benjamin dying. Before he was born,
before I held him, before I had seen anything except his outline
on an ultrasound, Nicki would not allow us to even consider the
possibility that Benjamin could die. Her mother and I spoke
briefly about how Nicki would handle losing a child, but neither
one of us dared bring up the subject with Nicki because those
thoughts, or words, were not allowed. Nicki’s child would not
die.
Sitting at his bedside,
watching him sleep, I think about his mother
and how she, as much as the doctors or the nurses, is responsible
for Benjamin’s survival. What we are going through is
hard, but it would be much harder to lose him.
Benjamin’s head is
turned slightly toward me. He has to lie on
his back because of the tubes and wires. The nurses turn his head
to the right and left periodically trying to make him more comfortable.
Benjamin looks so much
like Nicki. Watching him makes me
think about all the times, early in the morning, when I have watched
her as she slept — before she wakes. Benjamin has that same
look. His eyes push out against his eyelids and his lashes are
long and curved. His upper lip is full with a pronounced cleft
just under the nose. Just like Nicki, his cheekbones are high.
I think that he is going
to have my mouth, but he definitely has Nicki’s
eyes. I can’t tell yet about his ears. A
truly beautiful person has perfect ears, and if they don’t,
then they’re not beautiful. You can’t
hide ugly ears. Big ears, or ears
that stick out perpendicular to a person’s head, immediately
draw your attention. Even worse are long
ears, or ears that are scaly, or
ears with a lot of hair growing out of them. Whenever
I talk to someone, my
eyes are drawn to their ears. Most of the time,
hair or a hat cannot hide ugly ears and there is no makeup that
will cover them. Beautiful ears go unnoticed. They blend in
with the profile so perfectly that they become invisible, just
like a great referee disappears within a
game.
Benjamin’s ears must
be perfect because no one ever mentions them.
Today is the first time that I have ever allowed myself
to study them. I know that there is a certain amount of prejudice
that goes with being a father, but I feel that he is truly a
beautiful child. Angelic. Just like his mother.
Halfway through my
visit, my parents stopped by. Mom came
in to see Benjamin while Pop waited in the lounge. Benjamin
is their second grandchild. My sister’s son Adam is their
first. I have not been doing a
good job of keeping them informed
about Benjamin’s progress. While we were sitting by his
crib, Mom placed her hand on Benjamin’s chest like she had seen
Nicki do. Benjamin reached up with his right hand and grasped
her finger. Mom tested his grip by gently raising her finger up
and down while Benjamin held on. As I grew to adulthood, I
lost count of the times that I have held onto my mother for
strength.
Mom was diagnosed with
cancer when I was in the seventh grade.
The prognosis was not good. Ann and I were not allowed to go to the
hospital to visit her because we were too young.
Before her surgery, Mom sat Ann and me down on the couch.
She told us that she had cancer and that she was going to need
surgery. I did not know anything about cancer except that John
Wayne died when he got it.
On the day of the
surgery, my aunts came and stayed with Ann
and me while Pop was at the hospital. I remember my Aunt Margie
answering the telephone when Pop called to give her the results
of the surgery — and to tell her that the tumor was malignant.
Aunt Margie started crying while she was still talking on
the telephone.
I got up and ran to my
room, not wanting to listen as my aunts
discussed the information between each other like Ann and
I weren’t supposed to know what was happening. But she was
our mother! So I ran from the room because it terrified me to
see them cry. Adults only cry about death. They can take pain
or not getting their way, but death
always brings tears — even when
it is expected.
I locked the door and
started to clean my room. I made my bed
and straightened my closet until everything was arranged —
perfectly — totally symmetrical. I even picked up the small
white specks that the vacuum cleaner
doesn’t pick up. Then I turned
off the lights and sat between the wall and my bed. I
could not imagine living without my mother. She was my
best friend. She taught me how to read and she shared with me
her love of movies. She took me to ball practice and listened
to my dreams.
We lived in the country
and were surrounded by farmer’s fields,
cows, and woods. Our neighbors were all elderly. My Mammaw
lived right next door. The only time I was around kids
other than my sister was at church or school. Mom provided the
entertainment at home. She was the pitcher in our kickball
games, the rebounder when I practiced basketball, and the
undisputed champion in Ping-Pong and dodge ball.
My thirteenth birthday
came while she was still in the hospital.
Pop bought me a birthday cake, but I refused to celebrate until
Mom came home. I made them put the cake in the freezer.
I would not co me out of
my room when I was at home because
I did not want to hear what the grown-ups were talking about.
I didn’t want to face the possibility of losing my mother.
During that time, sleep
was my escape. I slept so soundly that I didn’t disturb the
sheets. The day that Mom came
home, I took the cake from the freezer
and let it thaw. I told Mom that her being home was the best
birthday present that I had ever gotten. Looking back, that was
the best cake I ever ate.
Everything that is
happening to Benjamin reminds me of when
my mother had cancer. I am having so much difficulty dealing
with the thought that Benjamin could die that I find myself
shutting down.
Looking at Benjamin hold
onto Mom’s finger makes me realize
that the only thing that I have done for these past six weeks
is hold onto anything I could — good news from the doctors and
nurses — hope. I am afraid to let go because I do not know
how far I would fall.
Benjamin is holding on,
too. He is holding onto life. He
gets his strength from his mother, just like I got strength from
mine. It has to be hard on Nicki because not only is she carrying
Benjamin, she is carrying me. I recalled today a Bible verse
that a friend shared with me a couple of years ago:
Trust in the Lord thy
God with all thine heart
and lean not unto thine
own understanding.
Proverbs 3:5
That’s all I can do.
Trust and wait.